Across the globe hundreds of rehabilitation centres are providing services to thousands of survivors of torture on a daily basis. To support these centres in their rehabilitative work as well as their ability to evidence their work and fight impunity, robust clinical data is vital. The EU-funded DFI Project was set up to meet this need, and through the creation of a standardised database system has facilitated centres’ abilities to collect clinical data; data that can then be used for various human rights outputs.
All presentations and trainings were translated to facilitate a deeper dialogue across contexts. (From left to right) Jasper Ukachukwu, Pemba Huguette Alonji, Milenge Goerges Georges Mazombwe, Vanquer Kalafula Lusu Yululu, Alexis Bora-Uzima Mashimago and Juma Abubakar Busi.
As part of the project, the IRCT has carried out a number of regional meetings, not only to introduce the project and the database to the wider torture rehabilitation movement, but also to provide a platform from which the centres can come together to discuss and collaborate on ways to ensure responsible data collection and management.
(From left to right) Daniel Mutambala Mazinda, Samuel Herbert Nsubuga, Peter Kum Che Mebeng and Dieynaba Ndoye discussing DFI’s role in the context of their respective centres.
The meeting for the Sub-Saharan Africa region took place in Nairobi, Kenya from 5 to 8 April. It saw 18 rehabilitation centres from across the region come together to learn more about the DFI database and to share their experiences, challenges and successes regarding data collection in their local contexts.
Samuel Maina, an external IT Security expert, delivers an interactive security training workshop to the participants. Topics covered included: working with confidential data, securing patient information, securing internal and external data sharing and communication and secure backup. Data security continues to be a fundamental focus of the DFI project.
In between the workshop and the many different activities and trainings, participants also had a chance to catch up with each other and exchange ideas and experiences.
Eric Antinga, the IT consultant responsible for the latest upgrade of the DFI database enjoying a photo opportunity with Dieynaba Ndoye from CAPREC, Senegal and Marthe Mukamana from Uyisenga ni Imanzi, Rwanda.
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Central to the development of the sector’s ability to evidence its work, is the collection of appropriate, consistent and comparable clinical information. The DFI Project represents a system-wide response to this need. DFI is based on building expertise through partners and ensuring that it is shared. The IRCT member centres piloting the project were selected on the basis of regional balance and capacity to represent the full range of rehabilitation practices across the movement and their ability to provide leadership and sustainability in the development of the project into a longstanding programme of work. Over the course of three years, ending in 2017, it will have put in place a standardised clinical record-keeping system in 33 member centres in 28 countries. In the final phase of the project, energy will be focused on sharing the database and associated training with the global movement to maximise impact.