The IRCT Data and Research Methods Reference Group (Data Reference Group) advises on the standards applicable to those engaged in IRCT data collection and its use as part of the IRCT Data Programme.
To this end, the work of the Reference Group covers 3 broad areas:
- General duties and responsibilities when collecting, storing, handling, transferring and using individual’s information in the setting of a holistic rehabilitation service for survivors of torture;
- Advise on guidelines and standards, shared minimum data sets, definitional questions, and contributions to training and capacity building efforts and to scientific conferences.
- Research methods, ethics, standards, principles and guidelines that apply in different types of research including for the protection of human subjects of research and for those research uses where the information is aggregated and anonymised/de-identified.
Appointment to the Reference Groups occurs on a three-year basis where members serve as subject-matter experts. The current group is comprised of 15 members including representatives from two existing data-sharing networks - the National Consortium of Torture Treatment Programs (NCTTP) and the Forum of Australian Services for Survivors of Torture and Trauma (FASSTT). The full list of Reference Group members is detailed below.
Data Research Methods And Reference Group Members
- Ane Kristine Viller Hansen, Health advisor, Danish Institute Against Torture (DIGNITY), Denmark
- Anette Carnemalm, Director, Red Cross Treatment Center for Persons Affected by Torture and War, Swedish Red Cross, Sweden
- Carlena Tu, Health Information Services Manager, Nsw Service for the Treatment and Rehabilitation of Torture Survivors (STARTTS), Australia
- Craig Higson-Smith, Director of Research, Centre for Victims of Torture (CSVR), North America
- Crystal Riley, Vice-President, and Chair of the Research & Data Committee, National Consortium of Torture Treatment Programmes (NCTTP), North America
- Dominique Dix-Preek, Knowledge and Learning Manager, Centre for the Study of Violence and Reconciliation (CSVR), South Africa
- Francis Lovemore, Director, Counselling Services Unit (CSU), Zimbabwe
- Hilda Nyatete-Mukui, Program Officer, Psychological Rehabilitation, Independent Medico-Legal Unit (IMLU), Kenya
- Jo Pettitt, Lead Researcher, Policy and Advocacy Directorate, Freedom from Torture (FFT), United Kingdom
- Lenin Raghuvanshi, Founder and Director of Jan Mitra Nyas/People’s Vigilance Committee on Human Rights (JMN PVCHR), India
- Linda Piwowarczyk, President, National Consortium of Torture Treatment Programmes (NCTTP), North America
- Megan Berthold, Co-Chair of the Research & Data Committee, National Consortium of Torture Treatment Programmes (NCTTP), North America
- Michal Mielimaka, Psychiatrist, Centre for Victims of Political Persecution (CVPP), Poland
- Paula Petersen, Forum of Australian Services for Survivors of Torture and Trauma (FASSTT), Australia
- Suraj Koirala, Executive Manager at Transcultural Psychosocial Organization (TPO Nepal), Nepal